Quick Update

We are back in Lincoln. Life seems to be at full speed. We are not. Yet it seems we have to keep up with a life that wants to move on but hearts that want to stay planted in the past. We have attending American Girl Fashion Shows, Hosted a Baby Shower, Went to church, gone out to eat, sat with a friend after surgery, be excited by the birth of Regan's friend Julie's baby, gone to track meets, gone to work, taught bible study and even more I am sure....this only in four days of being home.

So, we are moving on but life is so much different. It is quieter. We are quieter. I am quieter. I keep listening for her, thinking I hear her...Rylee said, "I just want to go back." Me too Rylee. Unfortunately in life we do not move backwards we move forward. This however makes this pain of loss even deeper. Many people have told us that they are happy they are that we will not have to take care of her..that we will have freedom. Funny thing is it feels like bondage not to take care of her. Raising Regan was one of the greatest blessings of my life. God set eternity in our hearts..so I would have done that forever.

I know many of you are praying for us. I have had many people ask or email me about the blog. Wondering if I would keep going. Yes, I will. I write on this thing because it frames my thoughts. I am sorry in advance for the thought I know I will have. I am trusting God for sufficient grace for myself and for you. Everyone who has lost a child says the most difficult days lie ahead.

Memorials and Memories

We're grateful for so many who have shared this journey with us. And we're prayerful that we'll continue on the journey together.

We are accepting donations to Lincoln Christian College and Seminary for a scholarship in Regan's honor. If you would like to make a memorial gift please send a check made out to the school to: 100 Campus View Dr., Lincoln, IL 62656.

We feel a certain sense of loss, to be sure. But we are among the wealthiest of families because of what we gained from Regan's every day. Her passing leaves a hole in our lives. But we're seeing that the hole is filled by the graces from God that we already had deeply buried in our hearts: precious memories, powerful lessons, real transformation and good friends. We count you among our many blessings.

God really is close to the brokenhearted (Psalm 34.18). His Word brings us stability. His Spirit brings us comfort. And His Body brings us help. Please don't feel sorry for us.....jealousy may be more appropriate. We are abundantly blessed.

See what I mean in the following video. Some students made it for the funeral service. Thank you Sherif, Ryan and Jiryis. It is a gift we'll treasure for the rest of our lives. We want to share it w/ you...

-Brian

Some thoughts

Because God gave us the advantage of knowing in advance that Regan would not live a long life on earth I have considered her death, funeral and burial many times. I pictured what it would be like to sit in the chapel and praise Jesus through my pain. I have done it there many times. Sometimes Regan was with me...sometimes not but I've known for years we would have her funeral there. I always prayed that all five of us would be together when Regan passed. I wanted us to have that memory of her. I wanted the four of us to have each other. We really love each other we we help each other in ways other people can't. Outside of giving birth to my children it was the most beautiful moment of my life. I wouldn't change even one things. The funeral was perfect too. She loved LCC. She loved to listen to her daddy preach in those walls....she loved to listen to many godly men speak truth. It is a room where God has ministered to us so many times. He did it again.

Yesterday we rode in a limousine behind Regan while she rode in the hearse (sp?). We drove out to the hill where Regan is laid. I am so happy she lays with red dirt around her. It is the same dirt I played in. The man who dug her grave is also one of my best childhood friends' dad. He was emotional with me. I knew her body was in good hands. Her casket looked say to small. The sun was so bright. In Regan's old life she would of had a tough time being there. But yesterday she was the one with no issues at all. We were surrounded by our family, people I grew up with and people that started Regan's journey with us in Dallas. What a full circle moment. God has been with us because He is always near the brokenhearted. No parent should ever have to do that.

Last night I sat out on my parents front porch and yard. Brian was out with his friend but so I spent some time with my family. My brothers made me laugh until I cried. The kids played in the sprinkler. Ryder with the help of two cousins made a memorial spot out by the fort. It is really great! Terran, my 4 year old niece said, "It's cuz we just miss her." Me too Terran me too.

We slept with the widows down in the house. Since early this morning I've been laying in bed listening to the birds sing. Wondering what type of birds she gets to hear in Paradise. The birds made me smile and cry. I heart breaks with the distance of time between now and when I will see Regan again. I am over whelmed with the brilliance of God's design that I would ever get to. I cling to this hope...cuz I just miss her.

Power of Presence.

Regan never spoke. She really didn't make much noise at all. She sat...silent.

Our house if full of noise. People coming in. People dropping things off...lots of tears dropping.
Children playing tag. Dishwasher running. Washer and Dryer. Lots of showers this morning. Ryder playing his video game. Rylee dancing and playing with her cell phone (old phone of ours).

Yet it is so quiet. I feel lonely. My hear and hands need something to do. How is that someone who made such little noise leave such a deep silence. I think she keeps teaching me the power of presence. It was a greatest lesson to me. The power that "being" gives the world. I always want to say something. I want to Do something. Regan taught me that is okay to just BE.

I miss her.

Plans for Celebration and Mourning

Between home visits, phone calls, texts, emails, tears, laughs and blank stares into tomorrow we have scheduled a few plans for this weekend.

Friday, 5-7pm, Visitation at Holland-Barry & Bennett Funeral Home in Lincoln

Saturday, 3:30pm, Funeral Service at the Hargrove Chapel, Lincoln Christian College & Seminary with dinner following at Lincoln Christian Church, Lincoln

We have a great Texas, Kansas and Oklahoma heritage. Since many of our closest family and friends may not be able to travel to Lincoln, IL, we have planned an opportunity for you to join us in Clinton, OK:

Monday, 2pm, Visitation at Kiesau-Lee Funeral Home in Clinton, OK followed by 3pm Graveside Service at the Clinton Cemetary and Reception at First Christian Church, Clinton.

Thank you for loving us...and for making sure that Regan will not be forgotten. We know that your hearts break with ours.

A New Journey

This is Chantell.......

At 11:28pm Wednesday April 16th Regan Faith Mills' faith was made sight. While in bed with her Big brother Ryder and Big sister Rylee with Brian and I right at her side and feet surrounded by a crowd of nurses, doctors, her Nana and Papa along with Shannon and Rob Maupin. With no struggle or medication assistance Regan took her last breath and let go of her body and was made New.......

God answered many prayers in the moment. He gave us a year of bonus time with her none of which was spent in the hospital and very few doctors appointments. He made sure that all of us were there. It was peaceful. We got three hours afterwards to hold her over and over, give her a bath, hear God's Word read by Rob, confess loudly our pain and joyfully express what Regan left behind.

We are happy for her. We are full of sorrow for ourselves. We know God is going to give us the grace to get through this but it will be another miracle to experience. We are helpless on our own. A new journey that is unfamiliar is beginning. The Mills' are great at working hard but we are terrible at letting it go.

Thank you seems little but it is what we have. Please continue to pray. More later.....

Struggle and Peace

Last night was pretty rough for Regan and for Chantell, so I'll do the update this morning...


When I arrived at the hospital this morning with the kids, Chantell explained that Regan can't talk with her words, but she has other ways to tell us how she feels. Her body communicates what her voice cannot. And she's telling us that she's very tired.


Last year we told her that we would run with her as long and fast as she wanted to run. Right now she seems to be saying that she's tired of running.


Last year she seemed to be fighting. Right now she seems to be at peace.


We never know what Regan is going to do. She's the Queen of Surprises and Rallies. Usually, she's just a mystery girl. But too often we don't listen very well to what she tells us. Our activity, emotion and selfish ambition get in the way. But if we're hearing her clearly today it seems like she's ready for Rest. I wonder if we are ready to let her rest. It's ironic that rest could be so near our tired family and be so unwelcome. But we'll try....another irony....we'll try to let her rest. And we'll struggle to be at peace.


We'll also try to keep you posted. We're a little sensitive to pulling you along a roller coaster ride. But, we're grateful for your care, support and prayer.

Terrible Tuesday

Just a quick update to let everyone knows that Regan was admitted into St John's today. She has pneumonia in all four quads of her lungs. Brian and I have been trying to the best of our ability to get her better but Regan continued to get worse. Regan's Primary Care Doctor actually came to our house this morning to see her and we felt it might be better for her to be admitted.
So she and I rode by ambulance to Springfield. Regan seemed to enjoy the ride. We were greeted by Jen, Amy and Buffy who are some of our favorite women who work on the 5th floor here. We also have one of our very favorite nurses Claire who we actually spent a Thanksgiving with a few years ago. She also used to work in Radiology and was Rylee's buddy from there.
She got Regan's IV in on the first try....PRAISE GOD! I do not think that has ever happened.


Regan is doing better since we arrived. Her respiratory rate was 90 when we arrived and is already at 54. She likes this place. We are under the care of Dr Lower. We love her. She knows Regan well and is diligent in Regan's care.

Today I am reminded that God is the source of all things good......I keep thinking....
"Come thou fount of every blessing, tune my heart to sing your praise, streams of mercy never ceasing calls for songs of loudest praise."

I'll update more later.....probably on Wednesday.

Monday Morning Miracle

After I updated on the progress yesterday Regan took a few steps back. So please continue to pray for her. We are continuing with breathing treatments every two hours 24 hours a day. Please pray specifically for her body to fight without having such a difficult time with the fever. We know fever works for us but this is a lot of work.

I am reminded today of the Lepers in Luke 17 who cried out with a LOUD voice..."Jesus, Master, have pity on us!" I cry out the same way. Last night sometime after midnight and before four as I struggled to rest while laying on Regan's bedroom floor (I am really too old to sleep on the floor) BUT as I laid there I was reminded of the importance of faith. My mind was going through the check list and I thought,"Am I doing all I can for her" and "I want to do more to help her...what can I do." I ended up at nothing. I am doing all I can. So that left me that that all too familiar place as I felt the Spirit remind me that now faith and prayer would be my nights work. In these moments I have no words....so I began to sing hymns...like Come thou Fount, Be thou my Vision, This is my Father's World, In Christ Alone, How Great is our God, It is Well... I pray these songs because they increase my faith, the remind me of truth, they are full of good theology. Eventually I find myself at peace...not total peace but I found some peace as I trust in HIS ability because I can not trust my own. I trust in HIS help because my help is full of holes. I found my self experiencing a what faith feels like and that is a miracle.

Garrett Maupin prayed last night that we would feel rested today even without a lot of sleep. He also told his mom, Shannon, how glad he was that Regan has lived so long because if she had not he would not have known her (he has only known her the past year and a half) and he said, "I am really glad I know her." Me too Garrett, today I am praising God for all that God teaches me because she is in my life. Thanks for your prayers.

Sunday's Update

Regan seems much better today. Her fever is responding to motrin and her breathing seems less labored. She is coughing some. So we are trying to suction up what we can. The coughs aren't as productive as we would like. But all in all she is much better than Friday and some better than yesterday.

Please continue to pray for her. She doesn't like all the suction and neither to we.....Brian stayed home with her this morning while I took the big kids to church. Brian is preaching tonight so I will stay home with her while he goes. Rylee's friend Kate is over playing this afternoon. Ryder is playing at his buddy Garrett's house. My heart feels lighter as her breathing is easier. We continue breathing treatments every two hours....I'll let you know more on Monday. Thanks for always praying...always encouraging...always remembering....

Running a Race

Just wanted to write a quick update. Regan is having breathing issues again. We are back to breathing treatments every two hours round the clock. This has only been going on a few days. She is currently on an antibiotic but is battling a difficult fever. It reached 104.8 last night and does not respond completely to treatment. Currently she is resting well and looks better than yesterday. It is amazing how good a fever of 101 looks next to 105.

Regan's life teaches me so many metaphors for life. I feel like God uses her to say..."Let me show you what I mean." When I watch her lay in bed "resting" but yet she is so "out of breath". Her chest is racing like she is running a race.I think about Paul writing about running in this race of life. I told Regan yesterday that I knew she was fighting so hard..that I was proud of her..I re-promised her that I would try my hardest too. Would you please pray for her. We have always promised her we would run with her as long as she wants to run. I know many of you have made that commitment too. We can not run this race on our own. The Spirit must continue to strength us or I know we will all run out of breathe. So pray for her strength...for each breathe to be full...I'll try to update on Sunday or Monday.

1 Corinthians 9 reminds us
"You've all been to the stadium and seen the athletes race. Everyone runs; one wins. Run to win. All good athletes train hard. They do it for a gold medal that tarnishes and fades. You're after one that's gold eternally. I don't know about you, but I'm running hard for the finish line. I'm giving it everything I've got. No sloppy living for me! I'm staying alert and in top condition. I'm not going to get caught napping, telling everyone else all about it and then missing out myself."

Me and My Cube

On my desk is a picture cube. If you were born in the 70's or before you know what I am talking about. I think every home had one. You can slide those great 3X3 pictures in each of the six sides of the hollow cube. It is one of the things that I have from my childhood. It comforts me to have it close. One of the sides is busted off. It doesn't do much and it serves no practical purpose except for the check book register and old cell phone that have found a home there until I figure out what to do with them. Mostly it is just there to remind me....

There are pictures on each side. There is a picture of me and my paternal Grandma at my first birthday. A picture of me and my Aunt Kathy, another of me and my Aunt Jo with her boys, another great one of me and my cousin Darren, and one of me and my cousin with my Dad. I don't remember any of these pictures being taken. I doubt anyone else remembers either (except maybe my mom because mom's just remember things like that). I keep this cube here where I spend some part of very day...straight in my line of sight...so I can be reminded.

My favorite picture in the cube is one is of my mom and dad and me. I was no more than a month old. I know this because the time stamp on the white trim of the photo says Mar 73.
My mom is in a cool polyester suit with the a cute pixie cut. My daddy is holding me. He has a pen in his pocket. When I was little I remember he always had a pen in his shirt pocket. (Funny because Brian always has a pen in his pants pocket). My dad looks proud. My mom is smiling mostly because she is relieved to no longer be pregnant I am sure. We are posed in that awkward pose with a newborn that can't hold it's head up. I have a theory that my Aunt Jo took it. She is always getting us to take pictures. She is the family historian. The pictures to the left is her with Regan this Christmas..she said "Here take a picture of me and Regan." The the pictures in my cube we are at at my Grandma's house. I have lots of memories in that house. It smelled musty and had itchy furniture but she made great macaroni and I loved playing rock star in front of her window AC (this taught me that blowing air is glamorous) . Unfortunately I don't have any memories of this day but I have a cube.

These pictures in this cube remind me that time flies, that I was once somebodies little baby...so innocent, so sweet...all I have to do was be and I made them proud. It reminds me that I am still connected to them even when I don't see them all the time. We have history and history means something. I am not innocent and sometimes I am sweet but I still make him proud.

This cube reminds me that one time my family was small. Just me, my mom and my dad. Now that little family of three has grown to 18 people. My parents did a good job raising me and my siblings. They weren't perfect but they did good. Someday my kids will be married and have kids. I want to make sure I am doing all I can to make a good impact...one that reflects Jesus and what he values. I pray for that grace will be abounding and love will grow. I look forward to watching my kids fall in love and have children but it makes me want to be present in today...times goes fast. I know if I am faithful with little God will give me much.

This cube reminds me of a time when my Grandma is holding me and knowing me. She and I had a special relationship. She would say, "I love you kid..be good" or "Done good kid." Things are different now when I hug her and she doesn't know me. Now she says, "I know I should know you kid." I agree with her...we laugh...and we talk about when her mom might come to visit her (my grandmother is in her late eighties so this is very funny conversation.) It doesn't matter if she knows me because I know her and I know that she loves me in her heart but her brain is stuck in another time. This picture reminds me take advantage of each moment so the ones I love won't have to wonder how I felt.

A year later.....

One year ago today we thought would be Regan's last day in her earthy body and her first day in life everlasting...a day she would be made new...the day we would let go and she would see Jesus. We thought it would be Regan's first day to walk, talk, raise her hands, confess with her mouth Jesus as Lord, hug, and sing a New song. We spent a few hours trying to figure out as a family we would walk out of St John's without Regan. We cried about how hard it would be to walk up Regan's ramps at our house without her. How we would drive her van home with an empty wheel chair in it...we were excited that Regan wouldn't need it anymore BUT we all cried because we agreed we all really LOVE taking care of her. I remember Rylee was in the bed with Regan and with tears falling down her face she said "I just don't want to let go". Brian rubbed her leg and told her he didn't want to either. She was wrapped in one of Regan's blankets from home. Regan basically has slept every night of the last 5 years under one these two blankets (both of them are in this picture). Brian was setting on the edge of the bed. Ryder and I were at the end. We had gathered around her for our good-bye to her. It was the hardest day of my life so far...I am sure there is a day somewhere in the future that will be harder. I remember feeling so frustrated that we had to go through this...yet so at peace with God's timing and will.

Many of you remember all of this because you were with us...reading along....praying to Jesus..preparing your own children. Crying tears all over the world. Nurses and Doctors filed through as new spread. Interestingly, Brian and I were at St John's last night, we volunteer there once a month, and I was chatting with a couple of nurses and we were talking about last year...about how hard it was for them. How unique that whole time was for everybody.

I remember going into the bathroom that was in our room and calling my sister because I couldn't figure out how to call my mom. I felt so bad asking her to do it ...to make the call I had no words for...my sister and I cried on the phone. We've cried lots of times together because we are sisters but this time we basically said three sentences..I told her it was happening. She said she was sorry and I said me too....the pain was the worse I have ever felt..it took my breath away.

Too many emotions to make sense of anything. Only tears and cries loud and soft for God's help to please deliver us from all of this. We prayed prayers of thankfulness for our grand opportunity to care and love Miss Regan Mills. We mostly tried to remember that God is a good Father...and that we trust HIM all the way.

Then all of a sudden as we are taking turns holding her...God began to take our breathe away for a whole new reason. I think God heard Rylee's prayer. To this day the doctors there call it a miracle. When we see them around the hospital they ask how she is and we say "good" they shake there head. We laugh. I took this picture of Regan on Easter while we were in KC. I makes me happy. It is amazing that a girl with only hours to live as lived an entire 365! And none of them where in the hospital.
This morning Brian and I along with Ryder and Rylee gathered around Regan in her bed again. Like last year we prayed a prayer telling God how thankful we are for our sweet Regan...how we consider it one of life's greatest gifts that we and call her ours...that we know her so well and get to care for her. We confess how much we trust Him all the way. We said Amen. Then Rylee started singing "Happy Birthday to You, Happy Birthday to you, Happy Birthday dear Regan Happy resurrection Birthday to you."

We know Regan didn't die all the way but to us it feels like she is living a new life...I can't help but think of how the writer of Hebrews describes Jesus...and I make that my prayer for us today.....that the same could be said of us...Brian, Chantell, Ryder, Rylee and Regan Faith but also you too!

"While Jesus was here on earth, He offered prayers and pleadings, with a loud cry and tears, to the ONE who could deliver Him out of death. And God heard His prayers because of His reverence for God. So even though Jesus was God's Son, He learned obedience from the things He suffered." Hebrews 5:7-8

Let that be so of us....let that be so!