Route 5: Our lil' Regs

Regan is here with her good friend Kate all "cuted" up for the Logan County Fair. We went on Friday morning to see the stinky animals and mostly eat some fair food for lunch. They are so cute in their shades. Regan and Brian didn't make it long because there was so much mud and poop everywhere that it was difficult to get Regan around. Oh well we tried

After the Fair Brian took Regan to get a blood draw...her first since April. We are trying to get this draw done before we go in for her doctor visit to see Diane, Regan's neurologist assistant. Diane knows Regan better than any other medical professional so it will be good to go see her.
She is going to help us figure out what our next move should be.

We also visited with Dr McKenna a few days ago. Regan had an ultrasound and we found out she has three kidney stones..up from two in January. That was very disheartening. We will go back to see him now every three months.

While visiting with Dr McKenna I took Regan to get weighed...she is down to 30 pounds...this is not good. We will go later this month to visit with the dietitian about what we need to do to get 10 lbs on her.

We are also going to see Dr Johnson our pulmanologist. They are going to do an night time oximeter study to get a more through read of her breathing. We hope this will give us explanation of why she is sleeping so much.

We have also decided to keep Regan home from school this year. She is sleeping so much that there is no point in making her go.

sooooo all in all this has been a crazy week couple of weeks for Regan. It is disheartening to go to appointments that only reveal bad things...it has been nice to be away from that for a while. But it is time to back to some doctor appointments for her. I know many of you pray for her everyday....so I wanted to give you some things to pray specifically for.

Hosea 6:1-3 1 "Come, let us return to the Lord. He has torn us to pieces but he will heal us; he has injured us but he will bind up our wounds. 2 After two days he will revive us; on the third day he will restore us, that we may live in his presence. 3 Let us acknowledge the Lord; let us press on to acknowledge him. As surely as the sun rises, he will appear; he will come to us like the winter rains, like the spring rains that water the earth."